im refeeding on my own. i would rec 5-10cal/kg everyday. slowly increase it over the course of a week. thats what i read in a research paper. also another research paper said to be careful of thiamin(b1), potassium, magnesium, phosphate levels. and ofc sodium. look up the papers and check them out yourself. im on day 3 of refeed. and im not experiencing your refeed syndrome symptoms like nausea/sweats/swelling. please be careful. refeed edema is super painful. and i think that refeed syndrome is dangerous. stick to whole foods, avoid processed since processed has high levels of sodium and you rly wanna b careful with sodium when your bod/hormones are super sensitive to electrolyte balance rn. to sum, 1. start low cal and increase slowly 2. supplement potassium, magnesium, phosphate, thiamin, vit d 3. drink plenty water 2-4L 4. watch sodium level 5. wait out swelling/bloating bc thats due to higher intake of sodium and the kidney retaining water. that will balance itself out in abt a week

 

im refeeding on my own. i would rec 5-10cal/kg everyday. slowly increase it over the course of a week. thats what i read in a research paper. also another research paper said to be careful of thiamine(b1), potassium, magnesium, phosphate levels. and ofc sodium. look up the papers and check them out yourself. im on day 3 of refeed. and im not experiencing your refeed syndrome symptoms like nausea/sweats/swelling. please be careful. refeed edema is super painful. and i think that refeed syndrome is dangerous. stick to whole foods, avoid processed since processed has high levels of sodium and you rly wanna b careful with sodium when your bod/hormones are super sensitive to electrolyte balance rn

Thank u and good luck urself

 

pls be super careful, it's quite dangerous. maybe consider getting a blood test first? idk, just go slow at least <3

 

I have no tips because at this point you are in very real need of medical attention.

I've had refeeding syndrome before and it's life threatening.

 

I did end up at ER sunday. I'm home now with a follow up PCP dr appt this afternoon. Because of malnutrition/starvation/dehydration my body is trying to hold on to fluid nutrients or whatever it can. Fluid in chest/abdominal wall is what is causing the pain. Solution is complicated because of my missing parts. Normally a feeding tube. I'm not tube eligible. I was also to be on bedrest until the pcp says. ER Dr said 2 weeks, but I live alone and have never been able to obey bedrest.
Results:
Potassium low
Cl high
CO2 low
Calcium low
Albumin low
Prealbumin low
Total protein low
A/G ratio low
WBC low
RBC low
Hgb low
Hct low
Triponin showed a rise
We will see if Dr does anything. ER did blood work, urine, xray, and ekg. Nothing else. I'm not expecting much. Go. Blah blah. Leave. Waste of time. Just wanted to give y'all an update.

 

I imagine that would have been a very stressful experience. Are you feeling physically any better than before? I'm proud of you for getting the help you need even though it is hard xx

 

I don't feel I have received any help yet and no I feel worse. I'm weaker now than I was Sunday. Still swollen. Wt up 8 lbs from swelling. Just sleeping alot.

 

far out, I'm sorry you're feeling worse
Wishing you good rest tool get through it

 

Can I ask about the tube not being an option? You don't have to reply. I'm just curious.

 

My stomach has been removed and I've had 3 bowel resections

 

They ordered and echo for my heart and said to try and eat and drink. That was all. Home now

 

I get in whatever I can orally. I try to eat/drink once a day. If it doesn't work, I don't try again. What I mean by doesn't work is if it causes pain or nausea or vomiting (not b/p). Yesterday I was able to get in 1 egg and 1 water. Haven't tried anything today yet.